December was quiet and the house was quickly turning into an Amazon warehouse. It is keeping me busy and my mind off my deteriorating condition.
The stair lift finally arrived and it saved my life. I had been in tears every day before it as I struggled up and down the stairs with Andy helping. He is getting so frustrated because I can’t help myself. The situation is just getting worse and worse.
I really enjoyed Christmas, but fixated on the fact that it might be my last. A good friend of ours died from MND over Christmas. I met him at the Walton Centre at the start of my diagnosis and at that time he was nowhere near as advanced with his condition as I was. You couldn’t really tell he had any issues at all. This has really scared me. I have never really liked having a birthday on New Year’s Eve and now I am thinking that this will be my last. The new year always puts pressure on you to be happy and optimistic. We did have some good family time at Christmas, though, with hopefully some good memories for the children.